The Muenzer MPS Research & Treatment Center is proud to share A New Hope for Hunter Syndrome, a video featuring Dr. Kim Stephens, Executive Director of the Muenzer MPS Research & Treatment Center.
In this personal and inspiring story, Dr. Stephens reflects on her family’s journey after her son, Cole, was diagnosed with MPS II (Hunter syndrome). She discusses the challenges her family faced, the importance of advocacy, and the hope that research and advances in treatment have brought to the MPS community.
Dr. Stephens’ experience as both a mother and advocate has helped shape her commitment to supporting patients and families affected by MPS. Her story highlights the impact of collaboration among families, clinicians, researchers, and advocacy organizations working to improve outcomes for individuals living with rare diseases.
We invite you to watch the video below and learn more about the journey that continues to inspire the mission of the Muenzer MPS Research & Treatment Center.
Watch the video:
Contact the MPS Center
If you or a loved one has been diagnosed with MPS and would like to explore treatment options, consultation services, or research opportunities, we invite you to contact the Muenzer MPS Research & Treatment Center at MPSCenter@unc.edu .
Our multidisciplinary team is dedicated to providing comprehensive care and support for individuals and families affected by MPS.