MPS Center News

Members of the Muenzer MPS Research & Treatment Center recently participated in the 18th International Symposium on Mucopolysaccharidoses and Related Lysosomal Diseases (IMPSN), held June 4–7, 2026, in Florence, Italy. The symposium brought together researchers, clinicians, industry leaders, patient advocates, and families from around the world to discuss the latest...

The Muenzer MPS Research & Treatment Center is proud to announce that Dr. Joseph Muenzer was honored with the Life for MPS Award at the 18th International MPS Network Symposium on Mucopolysaccharidoses and Related Lysosomal Diseases (IMPSN), held June 4–7, 2026, in Florence, Italy. The Life for MPS Award recognizes...

The Muenzer MPS Research & Treatment Center is pleased to congratulate Lindsay Torrice, MSN, CPNP-PC, on her promotion to Associate Professor in the UNC Department of Pediatrics. Lindsay serves as Director of Clinical Research for the Muenzer MPS Research & Treatment Center and has dedicated her career to improving the...

The Muenzer MPS Research & Treatment Center is proud to share A New Hope for Hunter Syndrome, a video featuring Dr. Kim Stephens, Executive Director of the Muenzer MPS Research & Treatment Center. In this personal and inspiring story, Dr. Stephens reflects on her family’s journey after her son, Cole,...

Families affected by mucopolysaccharidoses (MPS) gathered at Boshamer Stadium this spring for a special evening of baseball, community, and awareness during Carolina Baseball’s MPS Awareness Night. Hosted in partnership with the Muenzer MPS Research & Treatment Center, the event brought together patients, families, clinicians, researchers, and supporters from across the...

A powerful connection spanning more than three decades of rare disease research came full circle at the 2026 Bay Area Biotech Forum, hosted by the San Francisco Business Times, when Dr. Emil Kakkis was honored with the forum’s prestigious Lifetime Achievement Award. Representing the Muenzer MPS Research & Treatment Center,...

Carolina Baseball recently used its platform to raise awareness for mucopolysaccharidoses (MPS) during a special MPS Awareness Night at Bryson Field at Boshamer Stadium. The event, held during the Tar Heels’ 9–2 win over High Point, brought together members of the Muenzer MPS Research & Treatment Center, MPS families, and...

A recent event at North Carolina Central University brought students together for the Genetics-in-a-Day Careers Workshop, hosted by the UNC Program for Precision Medicine in Health Care. The workshop focused on real-world applications of genetics and highlighted the impact of metabolic disorders across clinical care, research, and patient support. The...

The UNC Muenzer MPS Research & Treatment Center continues to play a critical role in advancing treatments for rare diseases, contributing to research behind a newly approved therapy for Hunter syndrome (MPS II). A recent CBS 17 story highlights the impact of this work, including a young patient from Hillsborough...

Dr. Kim Stephens, Executive Director of the Muenzer MPS Research & Treatment Center, and Dr. Joseph Muenzer, Director of the Muenzer MPS Research & Treatment Center, are featured in this FOX8 Buckley Report segment highlighting progress in treating rare diseases, including MPS II. The segment also includes the Selser family...

The Muenzer MPS Research & Treatment Center is proud to share recent national coverage from NBC News highlighting the U.S. Food and Drug Administration’s approval of a new treatment for children with Hunter syndrome (MPS II). This milestone marks an important step forward for the MPS community, particularly in advancing...

The Muenzer MPS Research & Treatment Center is proud to formally announce that there will be an MPS Awareness Day recognized in partnership with University of North Carolina Tar Heels baseball during the home baseball game as UNC takes on High Point University.on Tuesday, April 21. This special MPS Awareness...