MPS Center News

In this BioCentury op-ed, Dr. Joseph Muenzer joins other advocates in calling for a fit-for-purpose regulatory pathway for ultrarare diseases. Standard placebo-controlled clinical trials are often not feasible for these conditions, especially those affecting the brain where symptom onset and progression vary greatly between patients. These challenges can add years to...

Chapel Hill, NC – The Muenzer MPS Research & Treatment Center recently traveled to San Francisco, California, where the team led a MasterClass on Mucopolysaccharidosis (MPS) at Denali Therapeutics. The visit highlighted the importance of collaborative partnerships in advancing research, education, and care for individuals affected by MPS. During the...

Chapel Hill, NC — The team at the Muenzer MPS Research & Treatment Center joined the global rare disease community in recognizing MPS Awareness Day by proudly wearing purple—a color symbolizing strength, resilience, and unity across the MPS community. Muenzer MPS Center Team in purple for MPS Awareness Day Mucopolysaccharidoses (MPS)...

Team members from the Muenzer MPS Research & Treatment Center took part in the Raleigh Run for Rare, a 5K run and 1-mile walk hosted by the National MPS Society at Lake Crabtree County Park in Morrisville, NC. The event brought together families, advocates, and supporters to raise awareness and...

UNC Children’s has opened the Muenzer MPS Research and Treatment Center dedicated to improving the lives of patients with mucopolysaccharidoses (MPS), a group of rare inherited conditions, and advancing research with the goal of creating better therapies. UNC Children’s Opens Muenzer MPS Center in Chapel Hill

The School of Medicine’s pediatrics department will use a $10 million gift to establish a center to identify new ways to treat mucopolysaccharidoses, or MPS, a group of rare genetic disorders. The gift, from Vaughn and Nancy Bryson, who in 1960 both graduated from UNC’s School of Pharmacy, will create...