ELSI Friday Forum | ELSI and the Sale of Genetic Data: The Case of 23andMe with speakers Sara Gerke, JD, Neil Richards, JD, and moderator Anya Prince, JD. Genetic and associated health data of millions are collected and held by biobanks, DTC companies, pharmacies, academic medical centers, hospitals, technology companies and other entities. These institutions are increasingly …
Biosecurity in the Age of AI and Genomics with speakers Jassi Pannu, MD, Gigi Gronvall, PhD, and moderator Stephanie Guerra, PhD. The convergence of AI and biotechnology is reshaping both the promise and the peril of biological research, potentially increasing beneficial capabilities to achieve new therapeutics faster while also introducing new risks that nefarious actors could misuse of …
Rigor, Reproducibility and Responsibility: ELSI Questions in Population Data Practices with speakers Anne Flanagin, RN, MA, FAAN, Genevieve Wojcik, PhD, MHS, and moderator Aliya Saperstein, PhD. As large-scale genomic data sets are increasingly linked, harmonized, and repurposed across studies, questions about how to meaningfully define and compare population descriptors have taken on renewed urgency. This panel brings together …
Jonathan Engel, PhD This virtual Columbia Ethics Grand Rounds took place on May 13, 2025. https://www.mhe.cuimc.columbia.edu/news/ethics-grand-rounds-great-friendship-evolution-government-university-science-partnership-united-states Resource List Bush, V. (1980). Science: The Endless Frontier. (link is external and opens in a new window)National Science Foundation. Engel, J. (2023). Transforming American Science: Universities, the Government, and the Cold War(link is external and opens in …
Tuesday, May 6 4:00—5:00pm ET Roper Hall 6310 or via Zoom Presented by Richard Sharp, Ph.D. Lloyd A. and Barbara A. Amundson Professor of Biomedical Ethics and Professor of Medicine, Mayo Clinic Director of the Biomedical Ethics Program, the Center for Individualized Medicine Bioethics Program, and the Clinical and Translational Research Ethics Program While artificial …
Tuesday, May 6 12:00—1:00pm ET Virtual Presentation by Juliann Savatt, MS, CGC Assistant Professor, Genomic Health, Geisinger Co-director, Geisinger MyCode Genomic Screening and Counseling Program Currently, identification of individuals with genomic risk remains largely dependent on clinical testing that relies on a personal/family history of disease and access to specialty care. However, some patients …
Launch Event: March 28, 2025 CERA is thrilled to introduce our new event series, ELSI Journal Club, a forum for engaging with groundbreaking research that addresses the ethical, legal, and social implications (ELSI) of clinical genetics, featured in our journal partner, Genetics in Medicine. This series aims to engage professionals from genetics, genomics, and …
AI in Genomics and Genetic Counseling: Ethical, Legal and Social Issues. 🧬 Hosted by The Jackson Laboratory for Genomic Medicine Katya Orlova, a Variant Assessment Scientist at Ambry Genetics Date: Friday, March 7, 2025 Time: 12:00 pm EST Register here for the Zoom link:https://lnkd.in/gzJ_Sugs ✅ CEU Credits for Genetic Counselors: Each event in this series …
ELSIhub Collections are essential reading lists on fundamental or emerging topics in ELSI, curated and explained by expert Collection Editors, often paired with ELSI trainees. This series assembles materials from cross-disciplinary literatures to enable quick access to key information. Visit this link for more information: https://elsihub.org/resources/collections
Public-Private Partnerships for Gene Therapies: What Does the Public Get? Join us on Friday, January 10 at 12pm ET for ELSI Friday Forum: Public-Private Partnerships for Gene Therapies: What Does the Public Get?, with speakers: John Conley, JD, PhD, University of North Carolina at Chapel Hill School of Law Eva Winkler, Prof, Dr.med., Dr.phil., Section for Translational Medical Ethics, National Center for Tumor …