ELSI Friday Forum | May 8 | 12p ET
Making Genomics Matter: Science, Storytelling, and Public Engagement Speakers: Tina Lasasi, PhD, Janina Jeff, PhD, MS Moderator: Grace Byfield, PhD Register here.
Category: News and Events
ELSI Friday Forum | Apr. 10 | 12p ET
Uncovering the Past Responsibly: Exploring Ethical Challenges and Recommendations of Ancient DNA Research Ancient DNA research is transforming how scholars reconstruct population histories, yet these tools operate within scientific and political landscapes that shape whose ancestors are studied, how consent is interpreted, and which communities bear the consequences of genomic discovery. When genetic data are …
ELSI Friday Forum | Feb. 13 | 12p ET
Just CRISPR: Is interventional genetics for rare diseases scalable? In 2025, KJ Muldoon was the first patient to be treated for a life-threatening genetic disorder with gene editing therapy. KJ received a diagnosis of severe carbamoyl-phosphate synthetase 1 deficiency (CPS1) as a neonate, and received treatment when he was 7 months old, under Expanded Access …
ELSI Friday Forum | Dec. 12 | 12p ET
Dextinction and Deliberate Extinction From the dire wolf to the screwworm, scientists are turning the tools of genetics to the elimination–and recreation–of entire nonhuman species. This webinar explores how and why genetic technologies might be used to eradicate some species and recreate others, with a focus on recent efforts and near future possibilities. The ethics …
ELSI Friday Forum | Nov. 14 | 12p ET
What do researchers owe the Autistic community? with panelists Monique Botha, PhD and Tara Eicher, PhD, and moderator Ari Ne’eman, PhD Click here to register.
The Legal And Ethical Implications Of Neuroscience | Oct. 10 | 8:00a– 3:55p ET
NC Law Review Symposium at the UNC School of Law Articles and Authors: Overview: Neuroscience and the Law John M. Conley & Rami M. Major The Brain, Neuroethics, and Bioethics Leslie C. Griffin Post-trial Access to Beneficial Investigational Neural Devices Alex Foulkes Grafton & Gabriel LázaroMuñoz Off-Label Neuroimaging Jane Campbell Moriarty The Science of the …
ELSI Friday Forum | Oct. 10 | 12p ET
Knowing or Not Knowing: The Ethics of Returning Genetic Risk Information for Alzheimer’s Disease with panelists Jessica Mozersky, PhD (Washington University in St. Louis) and Ruth Ottman, PhD (Columbia University), and moderator Emily Largent, JD, RN, PhD (University of Pennsylvania) The return of genetic and biomarker information in Alzheimer’s disease (AD) research has emerged as a pressing …
ELSI Friday Forum | Sept. 12 | 12p ET
ELSI Friday Forum | ELSI and the Sale of Genetic Data: The Case of 23andMe with speakers Sara Gerke, JD, Neil Richards, JD, and moderator Anya Prince, JD. Genetic and associated health data of millions are collected and held by biobanks, DTC companies, pharmacies, academic medical centers, hospitals, technology companies and other entities. These institutions are increasingly …
ELSI Friday Forum | July 11 | 12p ET
Biosecurity in the Age of AI and Genomics with speakers Jassi Pannu, MD, Gigi Gronvall, PhD, and moderator Stephanie Guerra, PhD. The convergence of AI and biotechnology is reshaping both the promise and the peril of biological research, potentially increasing beneficial capabilities to achieve new therapeutics faster while also introducing new risks that nefarious actors could misuse of …
ELSI Friday Forum | June 13 | 12p ET
Rigor, Reproducibility and Responsibility: ELSI Questions in Population Data Practices with speakers Anne Flanagin, RN, MA, FAAN, Genevieve Wojcik, PhD, MHS, and moderator Aliya Saperstein, PhD. As large-scale genomic data sets are increasingly linked, harmonized, and repurposed across studies, questions about how to meaningfully define and compare population descriptors have taken on renewed urgency. This panel brings together …