The 7th ELSI Congress took place in Chapel Hill, North Carolina, on June 22-24, 2026 and brought together a diverse community of researchers, clinicians, trainees, policymakers, and community partners from around the world. On-line and on-site participants engaged in thought-provoking plenary sessions, workshops, paper presentations, and networking opportunities that fostered new collaborations and advanced conversations …
Making Genomics Matter: Science, Storytelling, and Public Engagement Speakers: Tina Lasasi, PhD, Janina Jeff, PhD, MS Moderator: Grace Byfield, PhD Register here.
Uncovering the Past Responsibly: Exploring Ethical Challenges and Recommendations of Ancient DNA Research Ancient DNA research is transforming how scholars reconstruct population histories, yet these tools operate within scientific and political landscapes that shape whose ancestors are studied, how consent is interpreted, and which communities bear the consequences of genomic discovery. When genetic data are …
Just CRISPR: Is interventional genetics for rare diseases scalable? In 2025, KJ Muldoon was the first patient to be treated for a life-threatening genetic disorder with gene editing therapy. KJ received a diagnosis of severe carbamoyl-phosphate synthetase 1 deficiency (CPS1) as a neonate, and received treatment when he was 7 months old, under Expanded Access …
Dextinction and Deliberate Extinction From the dire wolf to the screwworm, scientists are turning the tools of genetics to the elimination–and recreation–of entire nonhuman species. This webinar explores how and why genetic technologies might be used to eradicate some species and recreate others, with a focus on recent efforts and near future possibilities. The ethics …
What do researchers owe the Autistic community? with panelists Monique Botha, PhD and Tara Eicher, PhD, and moderator Ari Ne’eman, PhD Click here to register.
NC Law Review Symposium at the UNC School of Law Articles and Authors: Overview: Neuroscience and the Law John M. Conley & Rami M. Major The Brain, Neuroethics, and Bioethics Leslie C. Griffin Post-trial Access to Beneficial Investigational Neural Devices Alex Foulkes Grafton & Gabriel LázaroMuñoz Off-Label Neuroimaging Jane Campbell Moriarty The Science of the …
Knowing or Not Knowing: The Ethics of Returning Genetic Risk Information for Alzheimer’s Disease with panelists Jessica Mozersky, PhD (Washington University in St. Louis) and Ruth Ottman, PhD (Columbia University), and moderator Emily Largent, JD, RN, PhD (University of Pennsylvania) The return of genetic and biomarker information in Alzheimer’s disease (AD) research has emerged as a pressing …
ELSI Friday Forum | ELSI and the Sale of Genetic Data: The Case of 23andMe with speakers Sara Gerke, JD, Neil Richards, JD, and moderator Anya Prince, JD. Genetic and associated health data of millions are collected and held by biobanks, DTC companies, pharmacies, academic medical centers, hospitals, technology companies and other entities. These institutions are increasingly …
Biosecurity in the Age of AI and Genomics with speakers Jassi Pannu, MD, Gigi Gronvall, PhD, and moderator Stephanie Guerra, PhD. The convergence of AI and biotechnology is reshaping both the promise and the peril of biological research, potentially increasing beneficial capabilities to achieve new therapeutics faster while also introducing new risks that nefarious actors could misuse of …