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This project examines the perspectives of parents of young children (birth to eight years) with Autism Spectrum Disorder (ASD) related to the facilitators and challenges across three key time points: between first concerns and consulting with a professional, up through the diagnosis, and through entry into early intervention. Eight focus groups (4 English speaking, 2 Spanish speaking, 2 American Indian) were conducted with 55 caregivers. Results will be helpful in addressing needs of families of children with ASD.

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Contact Person

Elizabeth Crais PhD bcrais@med.unc.edu

Investigators and Key Personnel

Steven Hooper (PI), Rebecca Pretzel (Co-PI), Elizabeth Crais, Cara McComish, Emily Kertcher, Sherry Mergner, Michelle Villalobos, Deborah Zuver, Laura Klinger, Maureen Morrell, Ann Palmer, Rob Christian, Lauren Turner-Brown, Ann Cox, Pamela DiLavore, Julie Daniels, & Kathleen Thomas

Primary Funding Source

Health Resources and Services Administration (HRSA)