Patient Resources
These resources are not affiliated with the Sickle Cell Clinic or UNC Medical Center. They are helpful tools for patients to have available to them as needed.
North Carolina Specific Resources
Here are some local resources that connect you to services, information, and other organizations throughout the state of North Carolina.
- Get connected to Sickle Cell Health Educators in your area. We work closely with NC Sickle Cell Health Educators, and you may even see them at your clinic appointment.
- Bridges Point is an agency with services, resources and events to connect with your community regarding Sickle Cell.
- Piedmont Health Services has a variety of resources such as free newborn screenings, case management and genetic counseling.
- Sickle Cell Camp is an overnight camp available to those six to sixteen years old with SCD.
Local SCD Support Groups
Living with Sickle Cell is hard. If you want to connect with others living with sickle cell, here are some support groups to get involved with.
- Wake County Support Group
- Durham County Support Group: email Cheryl Allen-Bivens.
National Sickle Cell Resources
- Sickle Cell Speaks is an informational tool that has information regarding the disease, disease management, and testimonials for people living with Sickle Cell or hoping to learn more.
- Sickle Cell Disease Association of America can connect you to information, clinical trials and other advocacy efforts nationally.
- Connect with Be the Match regarding bone marrow transplant.
- Donate Blood at the American Red Cross.