On November 9, 2025, the UNC Department of Neurology hosted the 2nd North Carolina NMOSD (neuromyelitis optica spectrum disorder), MOGAD (myelin oligodendrocyte glycoprotein antibody–associated disease) & Transverse Myelitis Patient Day, bringing together patients, families, caregivers, and healthcare professionals for a full day of learning, support, and community.
The event took place at The Friday Center in Chapel Hill, with a virtual attendance option to allow participation from across North Carolina and beyond. The day opened with a warm welcome from Dr. Gwenn Garden, Chair of UNC Neurology, who emphasized the department’s commitment to patient centered care, education, and long term partnership with the community.
The event featured a multidisciplinary group of presenters including Dr. Irena Dujmovic Basuroski, Dr. Monica Maria Diaz, Amanda Cotton, RN and LaShonda Meadows, LCSW, from UNC Neurology; Stephanie Iyer, CPP from the UNC Pharmacy, Dr. Christine Cleveland, Kylie McCarty, PT, Brittany Straub, OT, and Anna Weinburg, SLP, from the UNC Physical Medicine and Rehabilitation; Dr. Donna Graves from Atrium Health; Dr. Suma Shah from Duke University Neurology; Dr. Bushra Javed from Raleigh Neurology Associates, Dr. Nitin Sharma and Dr. Krysten Lambeth- researchers from the UNC/North Carolina State University Joint Department of Biomedical Engineering.
Throughout the program, experts explained these conditions in clear, easy to understand terms, including how they are diagnosed and how they differ from one another. Speakers discussed current treatments that help calm the immune system and reduce future attacks, as well as new and emerging therapies aimed at improving long term outcomes. The importance of personalized treatment plans and ongoing follow up care was emphasized. The program also addressed everyday life with these conditions. Presenters shared practical strategies for managing symptoms such as pain, fatigue, muscle stiffness, balance challenges, and mobility limitations. Rehabilitation specialists explained how physical and occupational therapy can help improve strength and independence, while nurses and support staff discussed emotional well being, care coordination, and clinical pharmacist helped understand how to navigate health insurance challenges. Topics such as pregnancy and breastfeeding were discussed in a reassuring and practical way, and researchers shared how new technologies may improve movement and function in the future. Interactive question and answer sessions allowed attendees to ask real life questions in a supportive setting.
Attendees enjoyed complimentary breakfast, refreshments throughout the day, and lunch, creating a comfortable and welcoming space to connect, learn, and share experiences.
This event built on the success of the first North Carolina NMO Patient Day held in 2019, continuing a growing tradition of patient education and community engagement. Feedback from attendees was overwhelmingly positive, with many participants sharing appreciation for the clear information, supportive environment, expert access, and opportunity to connect with others facing similar challenges. Based on this strong response, UNC Neurology plans to continue organizing patient education events like this in the future, reinforcing its long term commitment to individuals and families living with rare neuroimmune conditions.