Tag: registry

This is a genetic registry study aimed at developing a central location to store Parkinson’s Disease genetic data for future research use.

The objective of the registry is to create a cohort of patients with NMOSD. This registry will be used for future research, as well as improvements to the diagnosis, treatment, and understanding of NMOSD.

The purpose of this study is to characterize the natural history of DRPLA patients using a variety of clinical and biomarker modalities and to identify genetic factors, biomarkers, and clinical measures that could predict disease progression.

Brief Summary Long-term, multicenter, multinational, observational, registry of patients with gMG that is designed to collect data on clinical outcomes and safety in patients prescribed Alexion C5 inhibitor therapies (C5IT) such as eculizumab (Soliris®) and ravulizumab (Ultomiris®). Detailed Description At the time of enrollment in the Registry, participant records will...

This study aims to establish a research network and registry for persons with Dementia with Lewy Bodies (DLB) in order to characterize the disease and aid in future clinical trials.