The Bodford Family Transverse Myelitis Center
The Bodford Family Transverse Myelitis Center (BFTMC) at UNC provides comprehensive, patient-oriented care for pediatric and adult patients with transverse myelitis. It is one of the few centers in the country dedicated to this rare and complex condition. Through research programs, the Bodford Family Transverse Myelitis Center hopes to find new causes and develop new treatment for patients with transverse myelitis.
- Treatments for acute attacks of transverse myelitis (inpatient or out-patient, depending on the severity of the
condition): I.V. steroids, plasma exchange, intravenous immunoglobulins and some other immunotherapies
- Maintenance immunotherapies
- Multimodal symptomatic treatment for specific symptoms
- Multimodal neuro-rehabilitation programs: physical therapy including pelvic health, occupational therapy,
cognitive and speech rehabilitation if needed, functional electrical stimulation and neuroprosthetics
- Psychosocial support (individual interventions and support groups)
Approach to Care
- Our team develops personalized treatment strategies through a shared decision-making model that actively engages patients, including pharmacological therapies and personalized comprehensive neuro-rehabilitation programs.
- A specialized clinical pharmacist assists in medication management.
- Skilled nursing personnel support inpatient and outpatient care, and provides individualized care coordination.
- A licensed clinical social worker provides psychosocial support to our patients and their care-partners.
Mission and Vision
The Bodford Family Transverse Myelitis Center was established in the fall of 2019. In addition to our mission of providing exceptional comprehensive and individualized care for pediatric and adult patients with transverse myelitis (TM) of all causes and at all disease stages, our vision for the future is to:
- Conduct research and contribute to the development of new treatments including opportunities to participate in clinical research projects;
- Offer patient and caregiver educational programs and materials; and
- Serve as an educational center for healthcare providers in the field.
Clinical trials and educational programs will be announced.