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Neurofibromatosis and Schwannomatosis

Dr. Greenwood with patient, Marianna Huth; her mother, Janet Huth; and study coordinator, Sheila Joshi.
(L – R) Dr. Greenwood with patient, Marianna Huth; her mother, Janet Huth; and study coordinator, Sheila Joshi.

As clinic co-directors, Dr. Robert S. Greenwood and Dr. Jamie K. Capal oversee a multidisciplinary team of experts who specialize in the diagnosis and management of neurofibromatosis. Our specialists include neurologists, geneticists, genetic counselors, a neuropsychologist, general oncologists, neuro-oncologists, orthopedic oncologists, neuro-otologists, neuro-ophthalmologists, and neurosurgeons with expertise in managing brain and spinal tumors.

Clinical Care

The clinic’s care providers take a personalized, family-centered approach to your child’s treatment, often seeing families with more than one affected member.

UNC’s state-of-the-art imaging facility includes the only MRI/PET machine in North Carolina. A single imaging study can identify tumors throughout the body, allowing for the monitoring of tumor growth or detection of malignant tumors. The clinic provides treatment for many different types of NF tumors and participates in studies of new drugs to treat tumors caused by neurofibromatosis.

Recognition

Children's Tumor FoundationIn recognition of the UNC Neurofibromatosis Clinic’s quality of care, expertise, and research, the Children’s Tumor Foundation has designated the clinic as a member of their nationwide network of clinics. The NF Clinic Network includes clinics that provide comprehensive medical care, foster patient education, and encourage clinical research trials to provide new ways to care for patients with neurofibromatosis. The UNC NF Clinic enthusiastically supports the vision of the Children’s Tumor Foundation to end neurofibromatosis.

Appointments

Ask your doctor to fax a referral form to (984) 974-5437 or submit a child neurology referral through UNC CareLink. Call (984) 974-7337 if you have any questions.